Friday, September 30, 2016

My life with Crohn's - finding the diet proposed by K Teahon, I Bjarnason, M Pearson, and A J Levi

My name is Heather Smith and I have had Crohn's disease since age 9. I am 48. I have been through pretty much all Crohn's has to offer. My official diagnosis was made when I was 14.

When I was 9 I had a GP that took me off of milk, eggs, roughage, and steak as well as other tough meats. I was in remission using this diet for two years which was carefully monitored by my loving mother. As I got older, I began to eat other things, and by age 13 I was a ghost. I lost so much weight that I did not menstruate again until I was nearly 15.

After being out of school for over a year, a diagnoses was finally made. Crohn's with both small and large intestine involvement. Lucky me. Actually, I did feel lucky. I was in the pediatric ward and as I walked the halls I saw numerous five year old kids and younger with terminal cancer. Crohn's, my doctor said, could be managed through medication and diet. These methods sort of worked. I never felt completely well. My pattern was a year or two of good health followed by six months or more of devastating illness.

As I got older, I noticed that the gastroenterologists (when did they quit being proctologists?) did not advocate a specific diet, especially after I started biologics.

Remicade quit working for me after three years, and so did Humira. In July, I took my last dose of Humira, July 10, 2016, to be exact. It made my tongue swell up for three days. That was it for me. What now? I wondered. It was then that I stumbled on this article: after reading this article in The Daily Mail:

It states that 85% of patients went into complete remission using this diet. This is day 17 for me and it is going great.

More Later. Thanks, Heather